#cerebralpalsy

Soo sorry for the late post y’all. Good news is I Might have a mixtape coming. #rapper #redneckrapper #redneckrappermusic #rapper #writer #songwriter #soundcloudrapper #soundcloud #unsignedrapper #nolabel #disabled #disabledrapper #norecordlabel #disabilityawareness #cerebralpalsy #musculardystrophy ♿️📝🎤🎹🎧
Soo sorry for the late post y’all. Good news is I Might have a mixtape coming. #rapper #redneckrapper #redneckrappermusic #rapper #writer #songwriter #soundcloudrapper #soundcloud #unsignedrapper #nolabel #disabled #disabledrapper #norecordlabel #disabilityawareness #cerebralpalsy #musculardystrophy ♿️📝🎤🎹🎧
Colin & Olive's son Cam, son-in-law Byron & 2 mates Kris & Will are riding motorbikes across the Simpson Desert to raise funds for kids with a disability - @everystepfoundation 🚲🛵🏍🚲🛵🏍🚲🏍
If you'd like to follow their adventures - or better still donate to their fundraising - check out their Facebook page:
https://www.facebook.com/Bikes-4-Bikes-Charity-Ride-426263848230487/ 🏍🏍🏍
Or their fundraising page: 
givenow.com.au/bikes4bikes
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#bikes4bikescharityride2019 #everystepfoundation 
#cerebralpalsy
#simpsondesert #charityride #fundraiser
#donate #givenow #suzukimotorcycle 
#drz400 #🏍
Colin & Olive's son Cam, son-in-law Byron & 2 mates Kris & Will are riding motorbikes across the Simpson Desert to raise funds for kids with a disability - @everystepfoundation 🚲🛵🏍🚲🛵🏍🚲🏍
If you'd like to follow their adventures - or better still donate to their fundraising - check out their Facebook page:
https://www.facebook.com/Bikes-4-Bikes-Charity-Ride-426263848230487/ 🏍🏍🏍
Or their fundraising page:
givenow.com.au/bikes4bikes
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#bikes4bikescharityride2019 #everystepfoundation
#cerebralpalsy
#simpsondesert #charityride #fundraiser
#donate #givenow #suzukimotorcycle
#drz400 #🏍
"Let’s talk about the “unadoptable” shall we? It’s a subject no one really wants to hear or put a face to the name. (See picture for faces of those considered “unadoptable”) People see a label or a few potentially scary marks in a file and write them off without much of a second glance.

I’m talking the ones that no one even wants to consider because they don’t understand their needs. I’m talking the ones that might not make it a lifetime or even a year. The ones that might cost some time in a hospital or have medical bills pile up. The ones that people are “crazy” to consider.

What people DON’T see in a file is that you will be the blessed one - not the blessing. You will completely understand them and their needs, even without research or words. You will be so in love that you don’t “see” the difference in them. You will yell and scream and fight God for them and their lives. You will see their lives as worth and never as a burden. You will celebrate their little milestones of progress no matter how big or small. You will love them so unconditionally that no matter what is thrown your way, you carry on the best you can for them.

You see, what most people don’t see, is they are just like any other child, and you, YOU are just like any other parent." - Jocelyn Piper ❤️🙌❤️🙌❤️
#openheartsfororphans #orphancare #adoption #cerebralpalsy #WAGRsyndrome #cancersurvivor #GastautSyndrome #autism #tubielife #warriors #adoptionrocks
"Let’s talk about the “unadoptable” shall we? It’s a subject no one really wants to hear or put a face to the name. (See picture for faces of those considered “unadoptable”) People see a label or a few potentially scary marks in a file and write them off without much of a second glance.

I’m talking the ones that no one even wants to consider because they don’t understand their needs. I’m talking the ones that might not make it a lifetime or even a year. The ones that might cost some time in a hospital or have medical bills pile up. The ones that people are “crazy” to consider.

What people DON’T see in a file is that you will be the blessed one - not the blessing. You will completely understand them and their needs, even without research or words. You will be so in love that you don’t “see” the difference in them. You will yell and scream and fight God for them and their lives. You will see their lives as worth and never as a burden. You will celebrate their little milestones of progress no matter how big or small. You will love them so unconditionally that no matter what is thrown your way, you carry on the best you can for them.

You see, what most people don’t see, is they are just like any other child, and you, YOU are just like any other parent." - Jocelyn Piper ❤️🙌❤️🙌❤️
#openheartsfororphans #orphancare #adoption #cerebralpalsy #WAGRsyndrome #cancersurvivor #GastautSyndrome #autism #tubielife #warriors #adoptionrocks
Life is Good, Life is great! #GoNai #toddlerlife #sundayfunday #cerebralpalsy #cpkidsrock #beautifulgirls #braidsandbeads
Life is Good, Life is great! #GoNai #toddlerlife #sundayfunday #cerebralpalsy #cpkidsrock #beautifulgirls #braidsandbeads
Shout out to all my girls that love fire trucks 🚒 like me!!! It comes naturally when your daddy is a firefighter!
Shout out to all my girls that love fire trucks 🚒 like me!!! It comes naturally when your daddy is a firefighter!
#fatherandson #proudofyou #love #cerebralpalsy #cerebralpalsyawareness Me and Ramon
@that1legmonster 
@shawstrength
#cerebralpalsy #gym #Gymmotivation #changedmylife #bodybuilding #bodybuildingmotivation #powerlifting #powerliftingmotivation #crossfit #crossfitmotivations #inspire #nolimits #noexcuses
❤️💪🏽Physical Activity💪🏽❤️
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ABOUT THE VIDEO

This, ladies and gentlemen, is Mr. @smiles_taylor !! He has cerebral palsy and is inspiring all with his hard work and dedication as a power lifter. I ran into this video via FB on the @greatesthighlightsss page. However, I think the original video came from @wave.tv I am so grateful that I was lucky enough to WITNESS THIS (even if it was through social media). ———————————————————————— SHOUT OUT TO THE ATHLETE 
Miles (@smiles_taylor) Thank you for being so much for sharing your story with us. This comes without saying but you have proven all stereotypes related to physical activity and CP wrong. You are a true hero 🦸🏻‍♂️. ———————————————————————— PHYSICAL ACTIVITY IN RT/TR
Physical activity is one of other main domain in Therapeutic recreation. As a matter of fact it is the domain that I (as a professional in the TR field) focus on the most. Physical activity is extremely therapeutic and brings the best out of us (physically and psychologically). ———————————————————————— #powerlifting #milessmilestaylor #cerebralpalsy #therapeuticrecreationservices #recreationtherapy #physicalactivity #healthandfitness #fitness #therapy #happylife #passion #encouragement
❤️💪🏽Physical Activity💪🏽❤️
————————————————————————
ABOUT THE VIDEO

This, ladies and gentlemen, is Mr. @smiles_taylor !! He has cerebral palsy and is inspiring all with his hard work and dedication as a power lifter. I ran into this video via FB on the @greatesthighlightsss page. However, I think the original video came from @wave.tv I am so grateful that I was lucky enough to WITNESS THIS (even if it was through social media). ———————————————————————— SHOUT OUT TO THE ATHLETE
Miles (@smiles_taylor) Thank you for being so much for sharing your story with us. This comes without saying but you have proven all stereotypes related to physical activity and CP wrong. You are a true hero 🦸🏻‍♂️. ———————————————————————— PHYSICAL ACTIVITY IN RT/TR
Physical activity is one of other main domain in Therapeutic recreation. As a matter of fact it is the domain that I (as a professional in the TR field) focus on the most. Physical activity is extremely therapeutic and brings the best out of us (physically and psychologically). ———————————————————————— #powerlifting #milessmilestaylor #cerebralpalsy #therapeuticrecreationservices #recreationtherapy #physicalactivity #healthandfitness #fitness #therapy #happylife #passion #encouragement
What an AMAZING day!!! Jason is still on cloud nine and feeling so awesome because he played in his first ever football game! He was in the play to score the extra point! I cry every time I watch this video. 
As a special surprise Jason was an honorary captain, and lead the team at the end of the game to shake hands. Just so many special touches to make an incredible day with memories that will last a lifetime. 
Thank you so much to all the coaches at Holy Trinity for pulling this together, and especially coach O’Conner for really making this happen... he brings J to practice every week (or Dawn Atkins O'Connor ❤️) and has been instrumental in making Jason truly feel a part of the team. ****I also want to thank every single football player and THEIR families because you truly have some SPECIAL kids to treat Jason like they do! We are blessed beyond measure for this community and their love and support. THANK YOU!!!!!!!!!!! ***** Our sweet friend Brian Christiansen from @fox46charlotte came on his day off to record this!!!! Thank you so much! #specialneeds #cerebralpalsy #inclusion #hydrocephalus #hydrowarrior #cerebralpalsyawareness
What an AMAZING day!!! Jason is still on cloud nine and feeling so awesome because he played in his first ever football game! He was in the play to score the extra point! I cry every time I watch this video.
As a special surprise Jason was an honorary captain, and lead the team at the end of the game to shake hands. Just so many special touches to make an incredible day with memories that will last a lifetime.
Thank you so much to all the coaches at Holy Trinity for pulling this together, and especially coach O’Conner for really making this happen... he brings J to practice every week (or Dawn Atkins O'Connor ❤️) and has been instrumental in making Jason truly feel a part of the team. ****I also want to thank every single football player and THEIR families because you truly have some SPECIAL kids to treat Jason like they do! We are blessed beyond measure for this community and their love and support. THANK YOU!!!!!!!!!!! ***** Our sweet friend Brian Christiansen from @fox46charlotte came on his day off to record this!!!! Thank you so much! #specialneeds #cerebralpalsy #inclusion #hydrocephalus #hydrowarrior #cerebralpalsyawareness
Night fishing still No fish 🐠 but fun!!!
Tomorrow the kids are excited to go whale 🐳 watching!! #capecod2019 #smilesforbrookie #mylittlecpwarrior #cerebralpalsy #impossibleisnothing #cerebralpalsyawareness #nonverbal #inclusion  #yoocandoanything #smile #model #kidmodel #specialneeds #vacation #capecod #harwichport #fishing
Night fishing still No fish 🐠 but fun!!!
Tomorrow the kids are excited to go whale 🐳 watching!! #capecod2019 #smilesforbrookie #mylittlecpwarrior #cerebralpalsy #impossibleisnothing #cerebralpalsyawareness #nonverbal #inclusion #yoocandoanything #smile #model #kidmodel #specialneeds #vacation #capecod #harwichport #fishing
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
Today we tested out Ozzie’s crib for the first time. And yes, you heard that right...the very first time! He’s slept in our bedroom every night since the first day we brought him home for the NICU. It’s been impossible for us to try other options due to his tonic seizures with periods of apnea where his oxygen levels drop down into the 30s. And when his oxygen levels don’t drop, the only way we know he’s having a seizure is if we hear him. Having him close to us has been crucial. It’s been the safest option and what works best for our situation. 
Right now we have a window of opportunity without any major seizure activity to try things that weren’t possible before. It might take us a few weeks to get comfortable, but we’re going to give it a shot. I’m sure it’ll be harder on us than it is on him because he definitely enjoyed playing in his crib this afternoon. Wish us luck!! #OzzieDeason #preemie #28weeker #NICUgrad #hydrocephalus #hydrowarrior #infantilespasms #westsyndrome #epilepsyawareness #epilepsywarrior #pachygyria #pachywarrior #polymicrogyria #cerebralpalsy #cpwarrior #neuromuscularscoliosis #CVI #gjtube #tubielife #rarewarrior #careaboutrare #raredisease #ilovesomeonerare #ispeakrare #ppp2r1a #rareadvocate #adovatelikeamother #therewillbemiracles #SuperOzzie #OzziesWarriors
Today we tested out Ozzie’s crib for the first time. And yes, you heard that right...the very first time! He’s slept in our bedroom every night since the first day we brought him home for the NICU. It’s been impossible for us to try other options due to his tonic seizures with periods of apnea where his oxygen levels drop down into the 30s. And when his oxygen levels don’t drop, the only way we know he’s having a seizure is if we hear him. Having him close to us has been crucial. It’s been the safest option and what works best for our situation.
Right now we have a window of opportunity without any major seizure activity to try things that weren’t possible before. It might take us a few weeks to get comfortable, but we’re going to give it a shot. I’m sure it’ll be harder on us than it is on him because he definitely enjoyed playing in his crib this afternoon. Wish us luck!! #OzzieDeason #preemie #28weeker #NICUgrad #hydrocephalus #hydrowarrior #infantilespasms #westsyndrome #epilepsyawareness #epilepsywarrior #pachygyria #pachywarrior #polymicrogyria #cerebralpalsy #cpwarrior #neuromuscularscoliosis #CVI #gjtube #tubielife #rarewarrior #careaboutrare #raredisease #ilovesomeonerare #ispeakrare #ppp2r1a #rareadvocate #adovatelikeamother #therewillbemiracles #SuperOzzie #OzziesWarriors
• It’s been real Riley Fam! I appreciated sharing my story and struggles with you today. It has reinforced in me the idea that I need to continue to learn to love and accept all the things about myself, and remember that I am beautiful outside as well as in. All of us, no matter our illness or disability have that strong and beautiful person inside of us, we just need to embrace it and let it shine through 💖 This post has been brought to you by #selflove 💖 See you around insta #RileyTribe -settledsea🖤🌊🥀 • #cerebralpalsy #anxiety #depression #selfcare #rileyambassadors #penguingirl
• It’s been real Riley Fam! I appreciated sharing my story and struggles with you today. It has reinforced in me the idea that I need to continue to learn to love and accept all the things about myself, and remember that I am beautiful outside as well as in. All of us, no matter our illness or disability have that strong and beautiful person inside of us, we just need to embrace it and let it shine through 💖 This post has been brought to you by #selflove 💖 See you around insta #RileyTribe -settledsea🖤🌊🥀 • #cerebralpalsy #anxiety #depression #selfcare #rileyambassadors #penguingirl
Some one with autism needs you to see their strengths, their talents, their capabilities, their bright future. We at PURPUS are build around this quote. In fact, it's one of the reasons why we operate today. With the donations we make from our sales we are able to help fund resources that help nurture the next child with autism. If you could believe in helping others, all while using a great product, click on the link in our bio. Thank you.

#purpus
Some one with autism needs you to see their strengths, their talents, their capabilities, their bright future. We at PURPUS are build around this quote. In fact, it's one of the reasons why we operate today. With the donations we make from our sales we are able to help fund resources that help nurture the next child with autism. If you could believe in helping others, all while using a great product, click on the link in our bio. Thank you.

#purpus
@parafednorthland were very excited to receive a brand new track racing chair, saying that “it felt like Christmas! We can’t wait to see what our awesome athletes and members can achieve and gain from this equipment.”
@parafednorthland were very excited to receive a brand new track racing chair, saying that “it felt like Christmas! We can’t wait to see what our awesome athletes and members can achieve and gain from this equipment.”
Daripada mahal2 berobat..
Apalagi Berobatnya pun pake #riba

Lebih baik kita sama2 belajar yok..
Insyaa Allah bermanfaat untuk diri sendiri, keluarga, dan umat #Muslim

Early bird hanya sampai tgl 30 Agust 2019 loh..
BURUAN AMANKAN KURSIMU 😉

Mumpung ada pelatihannya di #Palembang jadi ga usah repot2 berangkat ke Luar Kota untuk mengejar ilmu ini seperti saya dan suami. ➡Pengusaha wajib belajar PAZ supaya karyawan anda ga ada alasan #Bolos karena sakit. ➡Yang punya Sekolah wajib belajar PAZ supaya murid2 di sekolah ada penanggulangan cepat ketika muridnya jatuh atau sakit. ➡Psikolog wajib belajar PAZ supaya bisa menangani klien yang punya gangguan psikis akibat dari gangguan fisik. ➡Orang tua yang punya anak, wajib belajar PAZ supaya kita bisa menjaga dan melindungi anak kita dan kita bisa menolong anak kita ketika sakit.

#PengobatanAkhirZaman #PAZ metode Al Kasaw
#PAZtrooper 
#syarafkejepit #benjolan #tumor
#diabetes #ginjal #jantung #migren #vertigo #autism #speechdelay #cerebralpalsy #tantrum #beser 
Bit.ly/PAZtrooper
Bit.ly/PAZtrooper
Bit.ly/PAZtrooper
Daripada mahal2 berobat..
Apalagi Berobatnya pun pake #riba

Lebih baik kita sama2 belajar yok..
Insyaa Allah bermanfaat untuk diri sendiri, keluarga, dan umat #Muslim

Early bird hanya sampai tgl 30 Agust 2019 loh..
BURUAN AMANKAN KURSIMU 😉

Mumpung ada pelatihannya di #Palembang jadi ga usah repot2 berangkat ke Luar Kota untuk mengejar ilmu ini seperti saya dan suami. ➡Pengusaha wajib belajar PAZ supaya karyawan anda ga ada alasan #Bolos karena sakit. ➡Yang punya Sekolah wajib belajar PAZ supaya murid2 di sekolah ada penanggulangan cepat ketika muridnya jatuh atau sakit. ➡Psikolog wajib belajar PAZ supaya bisa menangani klien yang punya gangguan psikis akibat dari gangguan fisik. ➡Orang tua yang punya anak, wajib belajar PAZ supaya kita bisa menjaga dan melindungi anak kita dan kita bisa menolong anak kita ketika sakit.

#PengobatanAkhirZaman #PAZ metode Al Kasaw
#PAZtrooper
#syarafkejepit #benjolan #tumor
#diabetes #ginjal #jantung #migren #vertigo #autism #speechdelay #cerebralpalsy #tantrum #beser
Bit.ly/PAZtrooper
Bit.ly/PAZtrooper
Bit.ly/PAZtrooper
In the gym, killing pull day, said goodbye to my bed this afternoon , got a lot going on, next time we’ll see each other is Tuesday 💔, I’ll Documenting turning into a zombie 🧟‍♂️ on my story
In the gym, killing pull day, said goodbye to my bed this afternoon , got a lot going on, next time we’ll see each other is Tuesday 💔, I’ll Documenting turning into a zombie 🧟‍♂️ on my story
He’s growing up but still so nervous.

Lucas: Mommy, since you won’t be teaching at school, how will I know where to go? Will you walk me all the way to my classroom?
Me: Of course buddy! We will do that all week.
Lucas: I’m nervous I do not know where to go.
Me: I’ll help you get our route!

This. This is what makes me cry. 😢I know he will be ok. But I get nervous. Will he use his words if he gets turned around?? Will he find one of the AMAZING teachers at Hardin Park and tell them he needs help?? Be strong and courageous! We have that memorized!! And if you work at HP, please look out for this one!! If he looks a little turned around, help him find his classroom! He is SO excited his class is outside!! (In the cottage...AKA the trailer)
He’s growing up but still so nervous.

Lucas: Mommy, since you won’t be teaching at school, how will I know where to go? Will you walk me all the way to my classroom?
Me: Of course buddy! We will do that all week.
Lucas: I’m nervous I do not know where to go.
Me: I’ll help you get our route!

This. This is what makes me cry. 😢I know he will be ok. But I get nervous. Will he use his words if he gets turned around?? Will he find one of the AMAZING teachers at Hardin Park and tell them he needs help?? Be strong and courageous! We have that memorized!! And if you work at HP, please look out for this one!! If he looks a little turned around, help him find his classroom! He is SO excited his class is outside!! (In the cottage...AKA the trailer)
Where’s Malcolm? 👻🤣
*photo taken by big sis
#cutekid #littleghost #hypoxicischemicencephalopathy #cerebralpalsy #cpwarrior #specialneedsparenting
Where’s Malcolm? 👻🤣
*photo taken by big sis
#cutekid #littleghost #hypoxicischemicencephalopathy #cerebralpalsy #cpwarrior #specialneedsparenting
{Progression of pictures}
1: "where's mom keep the tuna?"
2: "no tuna...heckin heck. I want tuna."
3: "BIRD"
4: "were u there the whole time? Heck.."
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Mattie gets in my fridge *every* time I open it. She loves it. And I'm stuck finding extra cat hair in everything 🤦🏻‍♀️
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I hope everyone had a wonderful #SelfCareSunday! 💚💚
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#CerebralPalsy #WhatCPLooksLike #Hashimotos #SpinaBifidaOcculta #Scoliosis #CerebralPalsyAwareness #Spoonie #AutoimmuneDisease #ChronicIllnessWarrior #ChronicPain #CripLife #DisabledLife #TiredGirl #ButYouDontLookSick #BodyPositive #DisabledAndCute #DisabilityAdvocate #PostOrthostaticTachycardiaSyndrome #POTS #EmotionalSupportAnimal #MyCatIsMyChild #MattieMae #CatsOfInstagram #CatMom
{Progression of pictures}
1: "where's mom keep the tuna?"
2: "no tuna...heckin heck. I want tuna."
3: "BIRD"
4: "were u there the whole time? Heck.."

Mattie gets in my fridge *every* time I open it. She loves it. And I'm stuck finding extra cat hair in everything 🤦🏻‍♀️

I hope everyone had a wonderful #SelfCareSunday! 💚💚



#CerebralPalsy #WhatCPLooksLike #Hashimotos #SpinaBifidaOcculta #Scoliosis #CerebralPalsyAwareness #Spoonie #AutoimmuneDisease #ChronicIllnessWarrior #ChronicPain #CripLife #DisabledLife #TiredGirl #ButYouDontLookSick #BodyPositive #DisabledAndCute #DisabilityAdvocate #PostOrthostaticTachycardiaSyndrome #POTS #EmotionalSupportAnimal #MyCatIsMyChild #MattieMae #CatsOfInstagram #CatMom
Today is another big day for MESIAH! Mesiah ate an entire @gerber banana 🍌 baby food purée for the first time in 7 years 👏🏽 yay Mesiah. 
#childrenwithdisabilities #autism #cerebralpalsy #gtube #celebration #disabled #givinghope #everychildderservesachance #trusttheprocess
Today is another big day for MESIAH! Mesiah ate an entire @gerber banana 🍌 baby food purée for the first time in 7 years 👏🏽 yay Mesiah.
#childrenwithdisabilities #autism #cerebralpalsy #gtube #celebration #disabled #givinghope #everychildderservesachance #trusttheprocess
• Hey all , back from the movies! As my time is winding down, I want to talk about a important coping mechanism for all my struggles, besides the ones I talked about: Music and going to shows. This first group of pictures is me at @the1975 show at the Anthem in DC on May 21st. They are my favorite band in the whole world, and whenever I listen to them all my stress just washes away. I connect with their sound so much and when I see them its always such a therapeutic and transformative experience for me. [My insta handle is basically a tribute to my favorite 1975 song ever, Settle Down- and then “sea” instead of “C” for my name 🌊] •
•
Live music in general makes me feel that way, but I owe alot to this band for how I cope with things. I also was able to go to Warped Tour last summer in Columbia, MD and survive the crowds and heat like everyone else! I was so proud of myself. And of course, my last picture is from going to see the love of my life, the one and only @niallhoran 😉🥰. Music will always play a very important part in my life. If you want to know more about what I listen to, you can follow my instagram because I’m always recommending music. •
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“If you can’t survive, just try”- The 1975, I Always Wanna Die (Sometimes) 😎🤘🏻✨🔲🥀🖤
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💖PS: My next major concert will be the @jonasbrothers comeback tour at HersheyPark and I’m so excited! What are some of your favorite bands that change your life? 💖
#cerebralpalsy #anxiety #depression #mentalhealth #selfcare #selflove #music #musicislife #the1975 #mattyhealy #georgedaniel #adamhann #rossmacdonald #niallhoran #jonasbrothers #nickjonas #kevinjonas #joejonas #happinessbeginstour
• Hey all , back from the movies! As my time is winding down, I want to talk about a important coping mechanism for all my struggles, besides the ones I talked about: Music and going to shows. This first group of pictures is me at @the1975 show at the Anthem in DC on May 21st. They are my favorite band in the whole world, and whenever I listen to them all my stress just washes away. I connect with their sound so much and when I see them its always such a therapeutic and transformative experience for me. [My insta handle is basically a tribute to my favorite 1975 song ever, Settle Down- and then “sea” instead of “C” for my name 🌊] •

Live music in general makes me feel that way, but I owe alot to this band for how I cope with things. I also was able to go to Warped Tour last summer in Columbia, MD and survive the crowds and heat like everyone else! I was so proud of myself. And of course, my last picture is from going to see the love of my life, the one and only @niallhoran 😉🥰. Music will always play a very important part in my life. If you want to know more about what I listen to, you can follow my instagram because I’m always recommending music. •

“If you can’t survive, just try”- The 1975, I Always Wanna Die (Sometimes) 😎🤘🏻✨🔲🥀🖤


💖PS: My next major concert will be the @jonasbrothers comeback tour at HersheyPark and I’m so excited! What are some of your favorite bands that change your life? 💖
#cerebralpalsy #anxiety #depression #mentalhealth #selfcare #selflove #music #musicislife #the1975 #mattyhealy #georgedaniel #adamhann #rossmacdonald #niallhoran #jonasbrothers #nickjonas #kevinjonas #joejonas #happinessbeginstour
Researching for my upcoming book on growing up with CP #cerebralpalsy and my transformation has uncovered some very unexpected and interesting facts about by adoption and birth-family tree.  With help and support from my genealogy researcher and friend @wolfylew ,  Lauren has uncovered a treasure-chest of family goodies like this picture of my maternal grandfather (1895-1989 F. Fritz)  A exact double of me!  As time progresses, I will share more of my findings. #brainmusclealliance #neuroplasticity
Researching for my upcoming book on growing up with CP #cerebralpalsy and my transformation has uncovered some very unexpected and interesting facts about by adoption and birth-family tree. With help and support from my genealogy researcher and friend @wolfylew , Lauren has uncovered a treasure-chest of family goodies like this picture of my maternal grandfather (1895-1989 F. Fritz) A exact double of me! As time progresses, I will share more of my findings. #brainmusclealliance #neuroplasticity
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
#poetry #poet #poets #poem #poems #poetrycommunity #poetsofinstagram #poemsofinstagram #instapoetry #instapoet #instapoets #ocd #disability #disabled #cerebralpalsy #ableism #ableist #includeus #wematter #equality #humanity #childhoodtrauma #depression #facts
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
.
Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
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Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
.
Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D  M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
.
After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
.
Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️G🔅🔅D M🔅RNING✖️
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Waking up to 👆🏼THIS 👆🏼 makes the long 10 HOUR drive through all the way from home so worth it
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After an incredible rollercoaster of a year that has seen Blair start to walk... Bray excelling... Chris working his usual incredibly hard self and me helping to enable all of that
.
Our little family SO desperately needed this time to just relax, unwind, recharge and just be together .
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
He so cute. 😍 #cerebralpalsy #cerebralpalsykids #cerebralpalsymom #cerebralpalsyawareness #cerebralpalsywarrior #epilepsyawareness #placentaabruptionsurvivors
Вот мы и вернулись.
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Давно мы здесь не появлялись,  но это не значит ,что и в жизни мы зависли)
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.  Много чего проделано за это время. Все по порядку расскажу.
 И да, я не забыла про тему о нашей эпилепсии, просто нужно было время всё пропустить через себя и переварить.
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 Спасибо всем ,кто остается с нами ,кто поддерживает нас и морально, и материально. Хотя мы и не открывали сбор, но наши добрые волшебники поддерживают Ярослава. Финансово и посылочками. Скрины тоже все выложу)
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 У ЯРОСЛАВА был немного тяжелый период временами из-за ввода препарата противосудорожного, поэтому сейчас я всё больше времени уделяю ребенку,а не гаджетам. Вот как-то так🤷‍♀️
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.  #детиангелы #мойсынок #мамыинстаграма #деткиконфетки #мамаблогер #нашблог #инстамамы #особенныйблог #детскийцеребральныйпаралич #эпилепсиинет #особаяжизнь #cerebralpalsy #cerebralpalsykids #cerebralpalsymom #cerebralpalsylife #утречко #воттакиепироги #моидетки #особенныйребенок #ангелысрединас #жизньсдцп #дцпнеприговор #особоедетство #борьбазасчастливоедетство #paralisiscerebral #cerebralpalsystrong #rehabilitation #momsblog
Вот мы и вернулись.
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Давно мы здесь не появлялись, но это не значит ,что и в жизни мы зависли)
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. Много чего проделано за это время. Все по порядку расскажу.
И да, я не забыла про тему о нашей эпилепсии, просто нужно было время всё пропустить через себя и переварить.
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Спасибо всем ,кто остается с нами ,кто поддерживает нас и морально, и материально. Хотя мы и не открывали сбор, но наши добрые волшебники поддерживают Ярослава. Финансово и посылочками. Скрины тоже все выложу)
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У ЯРОСЛАВА был немного тяжелый период временами из-за ввода препарата противосудорожного, поэтому сейчас я всё больше времени уделяю ребенку,а не гаджетам. Вот как-то так🤷‍♀️
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. #детиангелы #мойсынок #мамыинстаграма #деткиконфетки #мамаблогер #нашблог #инстамамы #особенныйблог #детскийцеребральныйпаралич #эпилепсиинет #особаяжизнь #cerebralpalsy #cerebralpalsykids #cerebralpalsymom #cerebralpalsylife #утречко #воттакиепироги #моидетки #особенныйребенок #ангелысрединас #жизньсдцп #дцпнеприговор #особоедетство #борьбазасчастливоедетство #paralisiscerebral #cerebralpalsystrong #rehabilitation #momsblog
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✖️Home Away From Home✖️
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Our boy Blair is without a doubt at his ABSOLUTE HAPPIEST when we are away on holiday together in our little caravan up on the Gold Coast
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And with the added bonus of waking up each day to this view is easy to see why!
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair  #cerebralpalsy #cerebralpalsyawareness #quadriplegic  #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
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✖️Home Away From Home✖️
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Our boy Blair is without a doubt at his ABSOLUTE HAPPIEST when we are away on holiday together in our little caravan up on the Gold Coast
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And with the added bonus of waking up each day to this view is easy to see why!
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#noordinarymumma @noordinarymumma #familytime #adventure #makingmemories #travel #explore #makethemostofit #wanderlust #mr10 #superblair #cerebralpalsy #cerebralpalsyawareness #quadriplegic #family #nevergiveup #strong #brave #myhero #myinspiration #blessed #grateful #positivevibes #inspire #specialneedsparenting #livelife #lovelife #mumlife #momlife #mumsofinstagram
A critical part of amazing success is dealing with challenges or limitations without being totally consumed by them. Challenges should not be ignored and require the right amount of focus and attention. https://www.sourenav.com/blog/focus-and-challenges
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#motivation #instamotivation #goals #inspire #success #aimhigh #lifegoals #goalchasing #goalcrusher #goals #motivationiskey #disabilitypride #disabilityinclusion #goalchasing #cerebralpalsy
A critical part of amazing success is dealing with challenges or limitations without being totally consumed by them. Challenges should not be ignored and require the right amount of focus and attention. https://www.sourenav.com/blog/focus-and-challenges
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#motivation #instamotivation #goals #inspire #success #aimhigh #lifegoals #goalchasing #goalcrusher #goals #motivationiskey #disabilitypride #disabilityinclusion #goalchasing #cerebralpalsy
Tu misericordia es para siempre, Señor. ⁣
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#CasaBetesdaEsAmorYEsperanza #CasaBetesdaChile #discapacidad #parálisiscerebral #inclusión #rehabilitación #imagenescristianas #PalabraDeDios #cerebralpalsy
Sore today, strong tomorrow💪🏼
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#adaptandachieve #discoveryourabilites #discoverstc #stl #stlfit #stlfitness #fitness #stlouismo #stlouis #stlouismissouri #stcharlesmo #solostep #cp #cerebralpalsy #adapt #adaptive #adaptiveathlete #athlete #adaptivetraining #adaptivefitness #adaptivegym #adaptivesports #iam1stphorm #alphalete #gymshark #everforward #fitfam #abilitynotdisability #ability
I’m so excited! I got my hair cut and colored for the first time since March 😬😆🤦‍♀️ ... #triprobs #nofilterneeded #iloveit .
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Thank you @shelbylchance you ALWAYS do an amazing job and are the sweetest thing ever! .
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#swimbikerun #ironmantraining #spoonie #spoonielife #spooniewarrior
#multiplesclerosiswarrior #mswarrior #takethatms #fums #mssucks #workout #homeworkout #workoutathome #fightback #chronicpain 
#momlife #momof4 #fitmom #momswhoworkout #workoutmom #momofspecialneeds #cerebralpalsy #autism #multiplesclerosis #fibromyalgia
I’m so excited! I got my hair cut and colored for the first time since March 😬😆🤦‍♀️ ... #triprobs #nofilterneeded #iloveit .
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Thank you @shelbylchance you ALWAYS do an amazing job and are the sweetest thing ever! .
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#swimbikerun #ironmantraining #spoonie #spoonielife #spooniewarrior
#multiplesclerosiswarrior #mswarrior #takethatms #fums #mssucks #workout #homeworkout #workoutathome #fightback #chronicpain
#momlife #momof4 #fitmom #momswhoworkout #workoutmom #momofspecialneeds #cerebralpalsy #autism #multiplesclerosis #fibromyalgia
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#paralisiacerebralnãoéofim #cerebralpalsy #criançasespeciais #serdiferenteenormal #inclusão
Because he'll always need me and that's ok. 💗
#ourbondisunbreakable 💕💕
#autism #cerebralpalsy 
#sundaythoughts 💕💕
Because he'll always need me and that's ok. 💗
#ourbondisunbreakable 💕💕
#autism #cerebralpalsy
#sundaythoughts 💕💕
LUCKY MUMAS | An incredible few days spent with these lovely ladies (and were missing a few from the pic!) to end what has been an amazing time in Byron Bay. These women truely are remarkable, smart, funny, kind, genuine ladies who we have all been brought together because of our children. We ate copious amounts of food, laughed, got our craft on, made new friendships and connections which I’m sure will last a lifetime. Thank you @jayniejohnson + @shara_reid for putting this @luckymama_aus retreat together ... till next time 🖤 .
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#mycupisfull #specialneedsmum #specialneedsparent #lissencephaly #cerebralpalsy #byronbay #luckymamaretreat #luckymama
LUCKY MUMAS | An incredible few days spent with these lovely ladies (and were missing a few from the pic!) to end what has been an amazing time in Byron Bay. These women truely are remarkable, smart, funny, kind, genuine ladies who we have all been brought together because of our children. We ate copious amounts of food, laughed, got our craft on, made new friendships and connections which I’m sure will last a lifetime. Thank you @jayniejohnson + @shara_reid for putting this @luckymama_aus retreat together ... till next time 🖤 .
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#mycupisfull #specialneedsmum #specialneedsparent #lissencephaly #cerebralpalsy #byronbay #luckymamaretreat #luckymama
💚Briella’s did so AMAZING on her birthday to wrap up her first week at Euro Peds Intensive Therapy here in Michigan. 😍💪🏻 Her PT Mrs. Barbara has been so great with her this week.🤗 The staff had Briella’s therapy room all decorated for her birthday, cute birthday tiaras to wear and Minnie Mouse cupcakes for her to take home.🧁🎉🥳⁣
🌟Briella has been rocking independent standing and stepping all week!! 😍💪🏻🙌🏻 Check out the video of her walking and bending down to pick up toys with her right hand!!! I’m just blown away by all the things she has done this week you guys... I’m seriously left speechless. 😍I can’t wait to see what she will do these next 5 days!! ⏩Swipe ⏩⁣
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#gobriellago #cerebralpalsy⁣ #europeds #birthdaygirl #pediatrictherapy #physicaltherapyworks #physicaltherapy #physicaltherapist #europeds #learningtowalk #briellaswishtowalkandtalk #strongereveryday #strengthanddetermination #lookathergo #cerebralpalsyawareness #cpwareior #sdrchangeslives #shesamazing #cerebralpalsywarrior #babysteps #prayedforthis #warriorprincess #godisgood #physiotherapy #ican #inspiredbydrive #cascadedafo
💚Briella’s did so AMAZING on her birthday to wrap up her first week at Euro Peds Intensive Therapy here in Michigan. 😍💪🏻 Her PT Mrs. Barbara has been so great with her this week.🤗 The staff had Briella’s therapy room all decorated for her birthday, cute birthday tiaras to wear and Minnie Mouse cupcakes for her to take home.🧁🎉🥳⁣
🌟Briella has been rocking independent standing and stepping all week!! 😍💪🏻🙌🏻 Check out the video of her walking and bending down to pick up toys with her right hand!!! I’m just blown away by all the things she has done this week you guys... I’m seriously left speechless. 😍I can’t wait to see what she will do these next 5 days!! ⏩Swipe ⏩⁣
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#gobriellago #cerebralpalsy⁣ #europeds #birthdaygirl #pediatrictherapy #physicaltherapyworks #physicaltherapy #physicaltherapist #europeds #learningtowalk #briellaswishtowalkandtalk #strongereveryday #strengthanddetermination #lookathergo #cerebralpalsyawareness #cpwareior #sdrchangeslives #shesamazing #cerebralpalsywarrior #babysteps #prayedforthis #warriorprincess #godisgood #physiotherapy #ican #inspiredbydrive #cascadedafo
Fight 💪💜
#epilepsy #epilepsyawareness #cerebralpalsy #autism #Epilepsy #epilepsywarrior #CameronBoyce #disability #cbd #anxiety #fibromyalgia #spoonie #chronicillness #cancer #depression #ENDSUDEP #adhd #SUDEPInstitute #SUDEP #health #epilepsypositivity #spoonielife #seizures #greatdane #medicine #puppy #greatdanesofinstagram #love #spooniecommunity #chronicpain
Usually we see #batik #Indonesia as #blouse #shirt #outer #bottoms or #bag . My #twins #friend made it in to an #etnik #necklace ,those available in store @roemahdifabelsmg / online @rdshopsmg #accessories #musthave #fashionitem #statementnecklace #style #chic #edgy #fashion #semarang #specialneeds #disability #cerebralpalsy #like4like #like4likeback #likeforlike #likeforlikeback #l4l #lfl 🇮🇩👭👌
Usually we see #batik #Indonesia as #blouse #shirt #outer #bottoms or #bag . My #twins #friend made it in to an #etnik #necklace ,those available in store @roemahdifabelsmg / online @rdshopsmg #accessories #musthave #fashionitem #statementnecklace #style #chic #edgy #fashion #semarang #specialneeds #disability #cerebralpalsy #like4like #like4likeback #likeforlike #likeforlikeback #l4l #lfl 🇮🇩👭👌
Janna’s teacher had fly back home last night for good 😭. It’s heartbreaking when I saw Janna cried on her last day. Eve is one of Janna’s best teachers unfortunately she only had the privilege to learn from her for a year. Eve accepts our kids and accommodates to their abilities, always flexible and creative in teaching them, and always sees their true potentials despite what everyone else said. And now she’s gone and we’re back to square one.

While I’m proud of Janna’s test result and her monthly reports, it saddens me... my child can learn but why won’t anyone want to teach her? She’s supposed to be learning and provided with free education just like any other kids, for God’s sake!

This time around, I really don’t know what to do. The fight for Janna’s education is really taking the toll on me, consuming me, making me feel so tired, weary and old. I just need to keep on going and look for alternatives. But why can’t schools or teachers see what Eve sees in our kids? I’m so mad and sad! And don’t tell me I didn’t try hard enough. Within these 10 years, Janna has attended 1 community-based rehabilitation centre, 1 centre run by an ngo, 3 public schools, 2 private centres and 2 private classes. I know some of them are not even considered as schools but we went and tried everywhere we could afford. 
Please, if you or someone you know is willing to teach Janna and a few of her friends with CP, please get in touch with me. We have a place in Cyberjaya ready to be used as their classes but we are also willing to go anywhere within reasonable distance (and fees). And also, please pray that the situation will soon change for the better for Janna and her friends. 
#wonderfulworldofjanna #cerebralpalsy #thestruggleisreal #educationforcerebralpalsy #inclusion #throwback
Janna’s teacher had fly back home last night for good 😭. It’s heartbreaking when I saw Janna cried on her last day. Eve is one of Janna’s best teachers unfortunately she only had the privilege to learn from her for a year. Eve accepts our kids and accommodates to their abilities, always flexible and creative in teaching them, and always sees their true potentials despite what everyone else said. And now she’s gone and we’re back to square one.

While I’m proud of Janna’s test result and her monthly reports, it saddens me... my child can learn but why won’t anyone want to teach her? She’s supposed to be learning and provided with free education just like any other kids, for God’s sake!

This time around, I really don’t know what to do. The fight for Janna’s education is really taking the toll on me, consuming me, making me feel so tired, weary and old. I just need to keep on going and look for alternatives. But why can’t schools or teachers see what Eve sees in our kids? I’m so mad and sad! And don’t tell me I didn’t try hard enough. Within these 10 years, Janna has attended 1 community-based rehabilitation centre, 1 centre run by an ngo, 3 public schools, 2 private centres and 2 private classes. I know some of them are not even considered as schools but we went and tried everywhere we could afford.
Please, if you or someone you know is willing to teach Janna and a few of her friends with CP, please get in touch with me. We have a place in Cyberjaya ready to be used as their classes but we are also willing to go anywhere within reasonable distance (and fees). And also, please pray that the situation will soon change for the better for Janna and her friends.
#wonderfulworldofjanna #cerebralpalsy #thestruggleisreal #educationforcerebralpalsy #inclusion #throwback
Sunday Climbing with Alex Parra at Planet Granite SF! Alex’s first day climbing and belaying.  #planetgranite #adaptive #adaptiveclimbing #climbing #cerebralpalsy #bayareaadaptiveclimbing #TeamCAF #CAFClimbing
Sunday Climbing with Alex Parra at Planet Granite SF! Alex’s first day climbing and belaying. #planetgranite #adaptive #adaptiveclimbing #climbing #cerebralpalsy #bayareaadaptiveclimbing #TeamCAF #CAFClimbing
Hello from my daughter’s new bed! It was a hand-me-down from my sister-in-law and might be made of fairy dust and unicorn wishes. I hereby declare this my new writer space. 💖🦄 #magical #writingdesk
Hello from my daughter’s new bed! It was a hand-me-down from my sister-in-law and might be made of fairy dust and unicorn wishes. I hereby declare this my new writer space. 💖🦄 #magical #writingdesk
WE NOW HAVE dis❌ABILITY HATS!! This is so exciting!! Let’s continue to knock “dis” out!! Link is in my bio!  #grateful #theloyalbrand #disability #cerebralpalsy
WE NOW HAVE dis❌ABILITY HATS!! This is so exciting!! Let’s continue to knock “dis” out!! Link is in my bio! #grateful #theloyalbrand #disability #cerebralpalsy
Our participants love showing off their dance moves when inspired! Keep moving!⠀
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#disability #disabilityawareness #disabilitysupport #disabilitypride #disabilityadvocate #disabilityservices #disabilitylife #learningdisability #downsyndrome #choosetoinclude #makeadifference #cerebralpalsy #pittsburgh #pitt #burgh #pgh #discoverpgh #412 #pittsburghproud #pittsburghblogger #smallbusiness #smallbusinessowner #allisonpark #weekendvibes #church
(1) horn sound app + (1) wireless speaker = The Bman can honk back!!!! 😂😂😂. BEEP BEEP!!!!! :))))
#beepforbman  #specialneedsfamily #specialneedsparents #watchingcars #wheelchairlife #specialneeds #amazingkids #joy #happiness #amazingcars #bellacannesauto #cerebralpalsy #cpkids #cpwarrior
(1) horn sound app + (1) wireless speaker = The Bman can honk back!!!! 😂😂😂. BEEP BEEP!!!!! :))))
#beepforbman #specialneedsfamily #specialneedsparents #watchingcars #wheelchairlife #specialneeds #amazingkids #joy #happiness #amazingcars #bellacannesauto #cerebralpalsy #cpkids #cpwarrior
De agorinha...❤
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#maternidadenareal 
#maternidadereal 
#rotinaespecialaylamartins 
#maternidadeatípica 
#cerebralpalsy #paralisiacerebral #cerebralpalsyawareness 
#superando #esefosseseufilho 
#superandolimites #superação 
#amor #carinho #afeto #diversão
Önce döver sonra severim🙏😘🤗 #nisauncu #balevlat #enbüyükdualarım #maşallahdiyelimnazarlardeğmesin #allahkorusun #babamız #prematurebaby #cerebralpalsy #nisabüyüyor #🙏 #🤲 #❤️
This is my Robina clinic - The Centre of Movement. We specialise in children's health and neuro development.
⭐ movement is the language of brain development ⭐
Our belief is that through movement we have the capacity to reconnect our nervous system to its innate wisdom. Re-wiring and creating new neural pathways through neuroplasticity to find ease, co-ordination and pleasure in life. 
As a connected community of human beings our lives and futures will be determined by how we LOVE and EMPOWER each other 🙌🙌🙌
Any wonder I choose to work here? We are a heart centered HOLISTIC clinic. ❤ it's my job to support these little athletes with their nutrition so they have all the energy they need for growth and development. 
I also support the PARENTS! 🙌
Children need their parents to stay strong too xx .
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#nutrition #movement #cerebralpalsy #community #naturopath #herbalist #nutritonist #genetics #MTHFR #autism #downsyndrome #anxiety #depression #kidshealth #pyrrole #keto #ketodiet #hormonehealth #sleep #preventdisease #adhd #energy #adrenalhealth #functionalmedicine #therasuits #holistichealth #healthbybianca
This is my Robina clinic - The Centre of Movement. We specialise in children's health and neuro development.
⭐ movement is the language of brain development ⭐
Our belief is that through movement we have the capacity to reconnect our nervous system to its innate wisdom. Re-wiring and creating new neural pathways through neuroplasticity to find ease, co-ordination and pleasure in life.
As a connected community of human beings our lives and futures will be determined by how we LOVE and EMPOWER each other 🙌🙌🙌
Any wonder I choose to work here? We are a heart centered HOLISTIC clinic. ❤ it's my job to support these little athletes with their nutrition so they have all the energy they need for growth and development.
I also support the PARENTS! 🙌
Children need their parents to stay strong too xx .
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#nutrition #movement #cerebralpalsy #community #naturopath #herbalist #nutritonist #genetics #MTHFR #autism #downsyndrome #anxiety #depression #kidshealth #pyrrole #keto #ketodiet #hormonehealth #sleep #preventdisease #adhd #energy #adrenalhealth #functionalmedicine #therasuits #holistichealth #healthbybianca
And just like that #mightymax ran F O U R T E E N laps in his #apexfunrun 🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️
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#cp #cerebralpalsy #cpwarrior #cpawareness #hemiplegiccerebralpalsy #maxoliver #micropreemie #nicu #nicuwarrior #almostfive #littlerunner #thurgoodmarshallelementary #eastlake #chulavista @clinthoang @jordenssalt
And just like that #mightymax ran F O U R T E E N laps in his #apexfunrun 🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️🏃‍♂️
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#cp #cerebralpalsy #cpwarrior #cpawareness #hemiplegiccerebralpalsy #maxoliver #micropreemie #nicu #nicuwarrior #almostfive #littlerunner #thurgoodmarshallelementary #eastlake #chulavista @clinthoang @jordenssalt
Trinity & Rocky really rocked the bowling alley at Kings this past weekend. It was a tight score but Serena took the lead. What a great team they make. 🎳 •

#gofidog #servicedog @legacyplace @kingsdine #bowling #summerfun #team #teamwork #sd #goldenretriever #goldenrock #goldenopportunitiesforindependence #gofi #gofiservicedog #servicedogsofinstagram #servicedogsofig #servicedoglife #helpingpaws #helpfuldog #weeklyfluff #weekendvibes #cerebralpalsy #cp #strong
Trinity & Rocky really rocked the bowling alley at Kings this past weekend. It was a tight score but Serena took the lead. What a great team they make. 🎳 •

#gofidog #servicedog @legacyplace @kingsdine #bowling #summerfun #team #teamwork #sd #goldenretriever #goldenrock #goldenopportunitiesforindependence #gofi #gofiservicedog #servicedogsofinstagram #servicedogsofig #servicedoglife #helpingpaws #helpfuldog #weeklyfluff #weekendvibes #cerebralpalsy #cp #strong
I can't believe I'm actually saying this but, My Twincesses are off to High School in the morning 🤢😪😭🤗 Such a mix of emotions we have especially trying to deal with Katie's anxieties the past few days about it, it's been really hard.. We're so proud of them and everything they have came through to get here, though I still have difficulties of actually accepting how quick the time has went past, this really throws me but it is what it is 😊  it's all new & different but they'll adapt quickly and I suppose even though they are twins they are so different from each other esp when it comes to feelings. Holly is nervous but excited about starting which is great and we've really built on that the past few days, Katie though is finding it difficult to not have all the ladies from Primary school that she's had for 7 years, esp her Amanda 😭 it will take a while to settle in but I'm sure she'll be fine 🤞 So, I'm off for another greet before I try and get some sleep 😊😂 Good luck to all your kids starting or just moving up a year, hope they have a good one 😘😘 #CerebralPalsydoesntstopher #CerebralPalsy #Twincesses #TwinSisters #inspiration #love #hincharmy #hinchyourselfhappy #hincher #minihinchers #mrshinchtheactivityjournal #ifyouknowyouknow @dereksteel1 @hollysteel_ @katiesteel126 xxx
I can't believe I'm actually saying this but, My Twincesses are off to High School in the morning 🤢😪😭🤗 Such a mix of emotions we have especially trying to deal with Katie's anxieties the past few days about it, it's been really hard.. We're so proud of them and everything they have came through to get here, though I still have difficulties of actually accepting how quick the time has went past, this really throws me but it is what it is 😊 it's all new & different but they'll adapt quickly and I suppose even though they are twins they are so different from each other esp when it comes to feelings. Holly is nervous but excited about starting which is great and we've really built on that the past few days, Katie though is finding it difficult to not have all the ladies from Primary school that she's had for 7 years, esp her Amanda 😭 it will take a while to settle in but I'm sure she'll be fine 🤞 So, I'm off for another greet before I try and get some sleep 😊😂 Good luck to all your kids starting or just moving up a year, hope they have a good one 😘😘 #CerebralPalsydoesntstopher #CerebralPalsy #Twincesses #TwinSisters #inspiration #love #hincharmy #hinchyourselfhappy #hincher #minihinchers #mrshinchtheactivityjournal #ifyouknowyouknow @dereksteel1 @hollysteel_ @katiesteel126 xxx
I was tagged by @yourlevelfitness to participate in the #5yearoldselfie Challenge by @whatcplookslike about 5 years before I fully grew into my head. I haven’t changed much #cerebralpalsy #buster_the_strongman 💪🏾💪🏾💪🏾💪🏾💪🏾#atlanta
I was tagged by @yourlevelfitness to participate in the #5yearoldselfie Challenge by @whatcplookslike about 5 years before I fully grew into my head. I haven’t changed much #cerebralpalsy #buster_the_strongman 💪🏾💪🏾💪🏾💪🏾💪🏾#atlanta
Oi, gente! Bom finalzinho de domingo💕
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#paralisiacerebralnãoéofim #cerebralpalsy #fisioterapia #phisioterapy #serdiferenteenormal #inclusão #cadeirante #superação #vencendoaparalisiacerebral
[in Robin Williams voice] GOOOOOOOOOOD MORNING, INSTAGRAM!
...smile! What does instagram and audition holding rooms have in common? — There are loud corners and quiet ones. Yesterday I had such a hard time making #smalltalk before my audition. And for the ones who know me both on- and offline: Coco bubbles. Yesterday I tried, too. But actors greeted me with silence or #quietsmiles. I smiled back. I always smile. You see me smiling and laughing the hardest when I feel the worst. Some people just do. It’s fake, I thought.
・・・
And the virtual world here is so fake, too. I felt so sorry yesterday for feeling so fake. For smiling, even though no one was talking or joking. Maybe that’s life. I used it in the audition. The silence. At least it gave birth to a little #authenticity. But the silence stuck with me. And it also made me wonder: What do we #tellstories for? For the one who listens or just for ourselves?
・・・
I’ve always belonged to the one who tells stories for other people. I love engaging, #dialogue. But sometimes it gets lonely when no one seems to care… When there are girls making a fortune posting photos of their pretty faces or nice asses with emoji captions. That’s it. And billions are watching, engaging, talking… ・・・
I’ve always liked #socialmedia, right from the start. I liked it even before I went public with my whole story. Because on social media I could be anyone, just like you. I used to hide my #walkingdisability for example. Because here, like in Hugo’s pretty picture, I’m just like you. Human. It’s so trivial, I loved it. But it’s fake, too. Just like all the life we paint, edit and snap here. One thing the virtual and real world have in common: It’s freaking lonely to think differently.
・・・
Maybe I’m thinking too complicated. Maybe I’m thinking too much. Maybe people just enjoy the simple things or maybe I should think more simple to tell you what I want to say. To say something… Either way, silence grows stamina and stamina thickens your — #ohsoflawless — skin, no? [borrow Robin Williams voice again:] END OF MONOLOGUE.
・・・
📸 @arvizu_arts
#ActingChange #cerebralpalsy #sundaythoughts #cpstrong
#peopleinframe #actorslife #portraitphotography
[in Robin Williams voice] GOOOOOOOOOOD MORNING, INSTAGRAM!
...smile! What does instagram and audition holding rooms have in common? — There are loud corners and quiet ones. Yesterday I had such a hard time making #smalltalk before my audition. And for the ones who know me both on- and offline: Coco bubbles. Yesterday I tried, too. But actors greeted me with silence or #quietsmiles. I smiled back. I always smile. You see me smiling and laughing the hardest when I feel the worst. Some people just do. It’s fake, I thought.
・・・
And the virtual world here is so fake, too. I felt so sorry yesterday for feeling so fake. For smiling, even though no one was talking or joking. Maybe that’s life. I used it in the audition. The silence. At least it gave birth to a little #authenticity. But the silence stuck with me. And it also made me wonder: What do we #tellstories for? For the one who listens or just for ourselves?
・・・
I’ve always belonged to the one who tells stories for other people. I love engaging, #dialogue. But sometimes it gets lonely when no one seems to care… When there are girls making a fortune posting photos of their pretty faces or nice asses with emoji captions. That’s it. And billions are watching, engaging, talking… ・・・
I’ve always liked #socialmedia, right from the start. I liked it even before I went public with my whole story. Because on social media I could be anyone, just like you. I used to hide my #walkingdisability for example. Because here, like in Hugo’s pretty picture, I’m just like you. Human. It’s so trivial, I loved it. But it’s fake, too. Just like all the life we paint, edit and snap here. One thing the virtual and real world have in common: It’s freaking lonely to think differently.
・・・
Maybe I’m thinking too complicated. Maybe I’m thinking too much. Maybe people just enjoy the simple things or maybe I should think more simple to tell you what I want to say. To say something… Either way, silence grows stamina and stamina thickens your — #ohsoflawless — skin, no? [borrow Robin Williams voice again:] END OF MONOLOGUE.
・・・
📸 @arvizu_arts
#ActingChange #cerebralpalsy #sundaythoughts #cpstrong
#peopleinframe #actorslife #portraitphotography
Real friends bring you workout clothes when you forget yours at home in a rush to get to work. And she made sure I looked cute! Thanks @hannnahls! You're the best! 
Side note...*whispers* She looks way cuter in this than I do... Swipe right to see how my brain feels after a very slow three miles (when I wanted so badly to do four) and a bit of legs.

#suckitcp #cerebralpalsy #cerebralpalsyawareness #irunbecauseican #girlswhorun #caraccident #recovery #legday
Real friends bring you workout clothes when you forget yours at home in a rush to get to work. And she made sure I looked cute! Thanks @hannnahls! You're the best!
Side note...*whispers* She looks way cuter in this than I do... Swipe right to see how my brain feels after a very slow three miles (when I wanted so badly to do four) and a bit of legs.

#suckitcp #cerebralpalsy #cerebralpalsyawareness #irunbecauseican #girlswhorun #caraccident #recovery #legday
2nd day working toward learn to ride a bike and he already got on the scooter by himself and started kicking.  running much better to.I am so proud of this kid. 
#bmx #BMX4LIFE #bmxlife #bikelife  #bmxfamily #bmxlifestyle #BRZRHD #804BMX #DISABLED #disabledathlete #cerebralpalsy #cerebralpalsyawareness #ourbmx #ridebmx #bmxers #youtube #neverquite #nevergiveup #livinglife #subrosa #theshadowconspiracy #subrosasaves #subrosabrand
🥀 Subrosa Forever  Forever Subrosa🥀
2nd day working toward learn to ride a bike and he already got on the scooter by himself and started kicking. running much better to.I am so proud of this kid.
#bmx #BMX4LIFE #bmxlife #bikelife  #bmxfamily #bmxlifestyle #BRZRHD #804BMX #DISABLED #disabledathlete #cerebralpalsy #cerebralpalsyawareness #ourbmx #ridebmx #bmxers #youtube #neverquite #nevergiveup #livinglife #subrosa #theshadowconspiracy #subrosasaves #subrosabrand
🥀 Subrosa Forever  Forever Subrosa🥀
Ohh 😪 I really don’t want to give back my chair this week, we are just starting to learn to dance together! 💃 💃 -
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#wheelchair #thisisfun #wheelchairlife #dancingtogether #newgroove #lovethisgame #togetherwithme #specialneeds #cerebralpalsy #whatshouldwedo #wecandothis #momanddaughter
Ohh 😪 I really don’t want to give back my chair this week, we are just starting to learn to dance together! 💃 💃 -
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#wheelchair #thisisfun #wheelchairlife #dancingtogether #newgroove #lovethisgame #togetherwithme #specialneeds #cerebralpalsy #whatshouldwedo #wecandothis #momanddaughter
#cerebralpalsy #gorgeous #beautiful
#cerebralpalsy #gorgeous #beautiful
Tinley is all ready for her first day of daycare. Mumma is not so ready. I am trying really hard to hold back the tears. 
Wish her luck!
#babyT #cerebralpalsy #epilepsy #vestibulardisorder #digestivehealth #workingmum #firstdayofschool #daycare #biggirl #bravegirl #backpack #barbie
Tinley is all ready for her first day of daycare. Mumma is not so ready. I am trying really hard to hold back the tears.
Wish her luck!
#babyT #cerebralpalsy #epilepsy #vestibulardisorder #digestivehealth #workingmum #firstdayofschool #daycare #biggirl #bravegirl #backpack #barbie
First OWS! @usaswimming #cerebralpalsy anything is possible
First OWS! @usaswimming #cerebralpalsy anything is possible
Sore today, strong tomorrow💪🏼
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#adaptandachieve #discoveryourabilities #adapt #adaptive #adaptivetraining #adaptivefitness #adaptiveathlete #adaptivegym #iamadaptive #adaptivesports #abilitynotdisability #ability #handicapable #athlete #cp #solostep #stlfitness #fitness #fitfam #fitgram #cerebralpalsy #gainttraining #strong #gym #everforward #gymshark #alphalete #discoverstc #stlouismo
Enjoying our last few days of being together before Sasha starts school! Sasha loves the water found this great water spot while hiking. Carrying a 95 pound kid down a trail to get there not so easy! #specialneeds #cerebralpalsy #cerebralpalsyawareness #cmvawareness #accessibilty #bestwaterfalls #watertherapy #campbellfalls
Enjoying our last few days of being together before Sasha starts school! Sasha loves the water found this great water spot while hiking. Carrying a 95 pound kid down a trail to get there not so easy! #specialneeds #cerebralpalsy #cerebralpalsyawareness #cmvawareness #accessibilty #bestwaterfalls #watertherapy #campbellfalls
The Coelho kids had a fun weekend! Jonathan and I took them to The Bridgewater Country Fair, it was the first time we’ve done something like that as a family. It was a great time,  we ate yummy food and saw tons of farm animals. Braedyn got a Elmo “tattoo”, this was the first time we’ve ever tried that with him and he did great. He sat super still and was very interested in the whole process, he loves showing off his new “ink”. We also took Braedyn on his very first amusement rides! We went on a Spinning Dragon and the Merry Go Round. He seemed to like the Dragon ride, but was very confused on The Merry Go Round  especially when it started moving. 😂 He didn’t like the spinning of the Merry Go Round but I don’t either so I can’t blame him. 😂
And even though she is too little to partake in Fair fun Penelope seemed like she had a good time as well! 
We had a little bit of a tough week, so enjoying so carefree family time was much needed. 
We haven’t received the “official” results from Braedyn’s MRI. We are waiting to speak directly to his Orthopedist and also his neurologist. Which we are hoping to do early this week. 
#journeyforbraedyn #septoopticdysplasia #cerebralpalsy #medicallycomplex #specialneeds #physicaltherapy #occupationaltherapy #speechtherapy #gtubebaby #mommyblogger #blogger #workhardplayhard #feedingtherapy #familyfun #twoundertwo
The Coelho kids had a fun weekend! Jonathan and I took them to The Bridgewater Country Fair, it was the first time we’ve done something like that as a family. It was a great time, we ate yummy food and saw tons of farm animals. Braedyn got a Elmo “tattoo”, this was the first time we’ve ever tried that with him and he did great. He sat super still and was very interested in the whole process, he loves showing off his new “ink”. We also took Braedyn on his very first amusement rides! We went on a Spinning Dragon and the Merry Go Round. He seemed to like the Dragon ride, but was very confused on The Merry Go Round especially when it started moving. 😂 He didn’t like the spinning of the Merry Go Round but I don’t either so I can’t blame him. 😂
And even though she is too little to partake in Fair fun Penelope seemed like she had a good time as well!
We had a little bit of a tough week, so enjoying so carefree family time was much needed.
We haven’t received the “official” results from Braedyn’s MRI. We are waiting to speak directly to his Orthopedist and also his neurologist. Which we are hoping to do early this week.
#journeyforbraedyn #septoopticdysplasia #cerebralpalsy #medicallycomplex #specialneeds #physicaltherapy #occupationaltherapy #speechtherapy #gtubebaby #mommyblogger #blogger #workhardplayhard #feedingtherapy #familyfun #twoundertwo
Made Justin push me around in this beast so we could get a free attendant pass 🤣
On the real though, last time I went to the safari park, all I could focus on was getting from point A to point B. By the time I pushed myself up the hills in the heat, I had lost interest in seeing the animals. This time around, I decided to take it easy. It’s not often that I give myself a free pass to be lazy, but this was the most fun I’ve ever had at the zoo. I’m slowly realizing that when it comes to my mobility, I don’t have anything prove 💚 #cerebralpalsy #wheelchairperks #bigbertha #thanksjustin
Made Justin push me around in this beast so we could get a free attendant pass 🤣
On the real though, last time I went to the safari park, all I could focus on was getting from point A to point B. By the time I pushed myself up the hills in the heat, I had lost interest in seeing the animals. This time around, I decided to take it easy. It’s not often that I give myself a free pass to be lazy, but this was the most fun I’ve ever had at the zoo. I’m slowly realizing that when it comes to my mobility, I don’t have anything prove 💚 #cerebralpalsy #wheelchairperks #bigbertha #thanksjustin
Should be obvious in 2019! .
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#cerebralpalsy #cerebralpalsydad #dadblogger #dadsofinstagram @dad2summit #disabilityblogger #disabilitylife #disabilitylifestyle #disabledblogger #wheelchair #wheelchairblogger #wheelchairdad #wheelchairdaddy #wheelchairfather #wheelchairhusband #wheelchairlife #wheelchairparenting
NEW: Five Reasons to #GoGreen4CP on @worldcpday 10/6/2019!...
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Click link in bio or go to https://nicoleluongo.com/five-reasons-to-go-green-on-world-cp-day/ #nicoleluongo  #GoGreen4CP2019 #cerebralpalsy #cerebralpalsyawareness #advocacy #whatCPlookslike #worldcpday
NEW: Five Reasons to #GoGreen4CP on @worldcpday 10/6/2019!...
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Click link in bio or go to https://nicoleluongo.com/five-reasons-to-go-green-on-world-cp-day/ #nicoleluongo #GoGreen4CP2019 #cerebralpalsy #cerebralpalsyawareness #advocacy #whatCPlookslike #worldcpday
Music ; Chris Porter ft Pitbull
Choreography; @_TriciaMiranda
Teacher;  Nathaniel @Studio22.  #dance #enabledlife #cerebralpalsy #pulmonaryveinstenosis  #complexneeds #prembaby #waterdance #passion #hearingloss #deafness #music
Music ; Chris Porter ft Pitbull
Choreography; @_TriciaMiranda
Teacher; Nathaniel @Studio22. #dance #enabledlife #cerebralpalsy #pulmonaryveinstenosis #complexneeds #prembaby #waterdance #passion #hearingloss #deafness #music